Gow, James, Colin Moffatt, and Jamie Blackport. "Participation in patient support forums may put rare disease patient data at risk of re-identification." Orphanet Journal of Rare Diseases 15 (2020): 1-12.

Rare disease patients often use support forums on hospital websites, social media, and rare disease foundation sites for medical advice and emotional support. However, these forums may pose privacy risks by making patient indirect identifiers and rare disease conditions publicly accessible, which could lead to re-identification by motivated attackers.