This study investigates long-term outcomes for patients with tracheoesophageal fistula (TEF) and/or esophageal atresia (EA) through a 50-point survey distributed in TEF/EA social media communities, gathering responses from 445 subjects. The findings reveal significant postoperative complications such as leaks, dysphagia, and gastroesophageal reflux disease (GERD), with 26% experiencing postoperative leaks and 54% reporting dysphagia post-repair. GERD was reported by 76% of participants, with 22% of those needing antireflux surgery, and a considerable portion requiring multiple surgeries. The study underscores the chronic nature of esophageal problems post-TEF/EA repair and the necessity for long-term follow-up into adulthood.
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Acher, Charles Wynn, et al. "Long-term outcomes of patients with tracheoesophageal fistula/esophageal atresia: survey results from tracheoesophageal fistula/esophageal atresia online communities." European Journal of Pediatric Surgery 26.06 (2016): 476-480.
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